Note: An Autistic Woman’s Battle with Ehlers-Danlos Syndrome | By Sebastian Rubino

Note: It’s often commented that Autistic people don’t tend to show age the same rate as our non-Autistic peers. This compliment of youthful appearance is actually a sign of Ehlers-Danlos Syndrome (EDS), and it is a serious condition.

EDS was once thought to be uncommon, but it’s now known to be a common comorbidity in Autistic people. If you are Autistic, or have an Autistic loved one, please take the time to learn more. – Eve Reiland


By Sebastian Rubino

Once she became 25, Rosie Ashcraft felt more pain than ever before. An indie-pop singer who goes by the name Scarlit Rose was living her life making music and raising her two sons. Out of nowhere, she lost the stability in her spine, and she was desperate for answers. In her case, misdiagnosis nearly cost the lady her life. 

Co-occurring conditions are not uncommon for autistic people, such as gastrointestinal issues, epilepsy, or insomnia. But one condition that isn’t often talked about is Ehlers-Danlos Syndrome. The Ehlers-Danlos Society states that it is a condition “generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility.” They also explain that there are 13 subtypes, including Classical EDS, Hypermobility Type EDS, and Cardiac-valvular EDS. Rose has Hypermobility Type EDS. (…)


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